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Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis

OBJECTIVE: To verify an association between clinical, nutritional and functional characteristics and longitudinal quality of life in children and adolescents with cystic fibrosis.METHODS: Observe measures related to demographic characteristics (sex and age), clinical (pulmonary function test and typ...

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Principais autores: Santana, Nelbe Nesi, Gonçalves, Christine Pereira, Chaves, Célia Regina Moutinho de Miranda, Gomes Junior, Saint Clair dos Santos
Formato: Artigo
Idioma: Português
Publicado em: Universidade Tecnológica Federal do Paraná (UTFPR) 2020
Acesso em linha: http://periodicos.utfpr.edu.br/rbqv/article/view/11968
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spelling peri-article-119682024-05-01T10:37:44Z Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis Impacto longitudinal das características clínicas, nutricionais e funcionais na percepção da qualidade de vida de crianças e de adolescentes com fibrose cística Santana, Nelbe Nesi Gonçalves, Christine Pereira Chaves, Célia Regina Moutinho de Miranda Gomes Junior, Saint Clair dos Santos 4.08.00.00-8Fisioterapia e Terapia Ocupacional Fibrose cística; Qualidade de vida; Criança; Adolescente. Cystic fibrosis; Quality of life; Child; Adolescent. OBJECTIVE: To verify an association between clinical, nutritional and functional characteristics and longitudinal quality of life in children and adolescents with cystic fibrosis.METHODS: Observe measures related to demographic characteristics (sex and age), clinical (pulmonary function test and type of genetic mutation), nutritional (weight, height, body mass index by age and height by age), functional capacity (distance covered in the 6-minute walk test and manual pressure force applied to dynamometry) and quality of life through the quality of life questionnaire in cystic fibrosis. He performed a linear regression model to assess associated factors such as the percentage limits of quality of life questionnaire in cystic fibrosis domains common to all age groups, considering a percentage variation of these domains in the period from 2017 to 2019.RESULTS: Functional capacity is related to the physical, social, food and treatment domains, presenting a direct proportional relationship. In addition, the presence of bacterial colonization negatively influenced the respiratory domain.CONCLUSIONS: Changes in clinical and functional characteristics are associated with changes in the domains of quality of life of children and adolescents with cystic fibrosis over two years. OBJETIVO: Verificar a associação entre as características clínicas, nutricionais e funcionais e a qualidade de vida, longitudinalmente, em crianças e adolescentes com fibrose cística.MÉTODOS: Observou-se medidas relacionadas às características demográficas (sexo e idade), clínicas (prova de função pulmonar e tipo de mutação genética), nutricionais (peso, estatura, índice de massa corporal para a idade e estatura para a idade), capacidade funcional (distância percorrida no teste de caminhada dos 6 minutos e força de preensão manual obtida na dinamometria) e de qualidade de vida através do questionário de qualidade de vida em fibrose cística. Realizou-se um modelo de regressão linear para avaliar os fatores associados com as variações percentuais dos domínios do questionário de qualidade de vida em fibrose cística comuns a todas as faixas etárias, considerando a variação percentual destes domínios no período de 2017 a 2019.RESULTADOS: A capacidade funcional relacionou-se com os domínios físico, social, alimentação e tratamento apresentando uma relação diretamente proporcional. Além disso, a presença de colonização bacteriana influenciou negativamente o domínio respiratório.CONCLUSÕES: As alterações nas características clínicas e funcionais associaram-se às mudanças nos domínios da qualidade de vida de crianças e de adolescentes com fibrose cística ao longo de dois anos. Universidade Tecnológica Federal do Paraná (UTFPR) 2020-09-30 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf http://periodicos.utfpr.edu.br/rbqv/article/view/11968 10.3895/rbqv.v12n3.11968 Revista Brasileira de Qualidade de Vida; v. 12, n. 3 (2020) 2175-0858 10.3895/rbqv.v12n3 por http://periodicos.utfpr.edu.br/rbqv/article/view/11968/pdf Direitos autorais 2021 CC-BY http://creativecommons.org/licenses/by/4.0
institution Universidade Tecnológica Federal do Paraná
collection PERI
language Português
format Artigo
author Santana, Nelbe Nesi
Gonçalves, Christine Pereira
Chaves, Célia Regina Moutinho de Miranda
Gomes Junior, Saint Clair dos Santos
spellingShingle Santana, Nelbe Nesi
Gonçalves, Christine Pereira
Chaves, Célia Regina Moutinho de Miranda
Gomes Junior, Saint Clair dos Santos
Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
author_sort Santana, Nelbe Nesi
title Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
title_short Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
title_full Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
title_fullStr Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
title_full_unstemmed Longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
title_sort longitudinal impact of clinical, nutritional and functional variables on health-related quality of life in children and adolescents with cystic fibrosis
description OBJECTIVE: To verify an association between clinical, nutritional and functional characteristics and longitudinal quality of life in children and adolescents with cystic fibrosis.METHODS: Observe measures related to demographic characteristics (sex and age), clinical (pulmonary function test and type of genetic mutation), nutritional (weight, height, body mass index by age and height by age), functional capacity (distance covered in the 6-minute walk test and manual pressure force applied to dynamometry) and quality of life through the quality of life questionnaire in cystic fibrosis. He performed a linear regression model to assess associated factors such as the percentage limits of quality of life questionnaire in cystic fibrosis domains common to all age groups, considering a percentage variation of these domains in the period from 2017 to 2019.RESULTS: Functional capacity is related to the physical, social, food and treatment domains, presenting a direct proportional relationship. In addition, the presence of bacterial colonization negatively influenced the respiratory domain.CONCLUSIONS: Changes in clinical and functional characteristics are associated with changes in the domains of quality of life of children and adolescents with cystic fibrosis over two years.
publisher Universidade Tecnológica Federal do Paraná (UTFPR)
publishDate 2020
url http://periodicos.utfpr.edu.br/rbqv/article/view/11968
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score 10,814766

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