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Overload level in informal caregivers of children with cerebral palsy

OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cr...

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Principais autores: Castro, Ketlin Jaquelline Santana de, da Silva, Tâmara Furtado, Cabral, Thais Gomes, Oliveira, Thianne Suellen Santos, Rodrigues, Emanuele de Cássia Rodrigues, Pinto, Denise da Silva
Formato: Artigo
Idioma: Português
Publicado em: Universidade Tecnológica Federal do Paraná (UTFPR) 2022
Acesso em linha: http://periodicos.utfpr.edu.br/rbqv/article/view/13337
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spelling peri-article-133372024-05-01T10:37:38Z Overload level in informal caregivers of children with cerebral palsy Nível de sobrecarga em cuidadores informais de crianças com paralisia cerebral Castro, Ketlin Jaquelline Santana de da Silva, Tâmara Furtado Cabral, Thais Gomes Oliveira, Thianne Suellen Santos Rodrigues, Emanuele de Cássia Rodrigues Pinto, Denise da Silva fisioterapia e Terapia Ocupacional Paralisia cerebral; cuidadores; pessoas com deficiência; crianças com deficiência; cuidado da criança. cerebral palsy; caregivers; disabled people; disabled children; child care. OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cross-sectional study with caregivers of children with a clinical diagnosis of CP attended at the FFTO-UFPA physiotherapy sector. The Informal Caregiver Burden Assessment Questionnaire (QASCI) and a form with identification and sociodemographic data of the caregivers were used. The collected data were transcribed to a database in the Excel® program. In order to describe the findings, descriptive statistics (mean, standard deviation, percentage) was used.RESULTS: The sample consisted of six mothers with a mean age of 30.6 + 4.6 years. The subcategory “Implications in personal life” (40.9%), “Family support” (29.1%) and “Financial burden” (29%) were the categories that obtained the highest score in the QASCI questionnaire among the participating caregivers, being classified as moderate.CONCLUSIONS: The increased burden on caregivers was identified in subcategories related to greater physical strain on the caregiver, the lack of a family support network and the increased financial impact on family income. These factors can compromise the caregiver's participation in social activities that are not directly related to the child's care. Emotional factors in this study were not related to the increased burden on caregivers. OBJETIVO: Identificar a sobrecarga física, emocional e social dos cuidadores informais de crianças com paralisia cerebral (PC) atendidos no ambulatório da Faculdade de Fisioterapia e Terapia Ocupacional (FFTO) da Universidade Federal do Pará (UFPA).MÉTODOS: Trata-se de um estudo descritivo e transversal com cuidadores de crianças com o diagnóstico clínico de PC, atendidas no setor de fisioterapia da FFTO-UFPA. Para a coleta de dados utilizou-se o questionário de Avaliação da Sobrecarga do Cuidador Informal (QASCI) e um formulário com identificação e dados sociodemográficos dos cuidadores. Os dados coletados foram transcritos para um banco de dados no programa Excel®. No intuito de descrever os achados, foi utilizada a estatística descritiva (média, desvio padrão, percentual).RESULTADOS: A amostra foi composta por seis mães com média de idade de 30,6+4,6 anos. As subdimensões Implicações na vida pessoal (40,9%), Suporte familiar (29,1%) e Sobrecarga financeira (29%) foram as categorias que obtiveram maior escore no questionário QASCI dentre os cuidadores participantes, sendo classificadas com nível moderado.CONCLUSÕES: O aumento da sobrecarga das cuidadoras foi identificado em subcategorias relacionadas ao maior desgaste físico da cuidadora, da falta de uma rede de apoio familiar e do aumento do impacto financeiro na renda familiar. Esses fatores podem comprometer a participação da cuidadora em atividades sociais que não estejam diretamente relacionados ao cuidado da criança. Os fatores emocionais, neste estudo, não foram relacionados ao aumento da sobrecarga das cuidadoras. Universidade Tecnológica Federal do Paraná (UTFPR) financiamento Próprio 2022-08-27 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf http://periodicos.utfpr.edu.br/rbqv/article/view/13337 10.3895/rbqv.v14n0.13337 Revista Brasileira de Qualidade de Vida; v. 14 (2022) 2175-0858 10.3895/rbqv.v14n0 por http://periodicos.utfpr.edu.br/rbqv/article/view/13337/pdf Direitos autorais 2022 CC-BY http://creativecommons.org/licenses/by/4.0
institution Universidade Tecnológica Federal do Paraná
collection PERI
language Português
format Artigo
author Castro, Ketlin Jaquelline Santana de
da Silva, Tâmara Furtado
Cabral, Thais Gomes
Oliveira, Thianne Suellen Santos
Rodrigues, Emanuele de Cássia Rodrigues
Pinto, Denise da Silva
spellingShingle Castro, Ketlin Jaquelline Santana de
da Silva, Tâmara Furtado
Cabral, Thais Gomes
Oliveira, Thianne Suellen Santos
Rodrigues, Emanuele de Cássia Rodrigues
Pinto, Denise da Silva
Overload level in informal caregivers of children with cerebral palsy
author_sort Castro, Ketlin Jaquelline Santana de
title Overload level in informal caregivers of children with cerebral palsy
title_short Overload level in informal caregivers of children with cerebral palsy
title_full Overload level in informal caregivers of children with cerebral palsy
title_fullStr Overload level in informal caregivers of children with cerebral palsy
title_full_unstemmed Overload level in informal caregivers of children with cerebral palsy
title_sort overload level in informal caregivers of children with cerebral palsy
description OBJECTIVE: To identify the physical, emotional and social burden of informal caregivers of children with Cerebral Palsy (CP) treated at the outpatient clinic of the Faculty of Physiotherapy and Occupational Therapy (FFTO) of the Federal University of Pará (UFPA).METHODS: This is a descriptive and cross-sectional study with caregivers of children with a clinical diagnosis of CP attended at the FFTO-UFPA physiotherapy sector. The Informal Caregiver Burden Assessment Questionnaire (QASCI) and a form with identification and sociodemographic data of the caregivers were used. The collected data were transcribed to a database in the Excel® program. In order to describe the findings, descriptive statistics (mean, standard deviation, percentage) was used.RESULTS: The sample consisted of six mothers with a mean age of 30.6 + 4.6 years. The subcategory “Implications in personal life” (40.9%), “Family support” (29.1%) and “Financial burden” (29%) were the categories that obtained the highest score in the QASCI questionnaire among the participating caregivers, being classified as moderate.CONCLUSIONS: The increased burden on caregivers was identified in subcategories related to greater physical strain on the caregiver, the lack of a family support network and the increased financial impact on family income. These factors can compromise the caregiver's participation in social activities that are not directly related to the child's care. Emotional factors in this study were not related to the increased burden on caregivers.
publisher Universidade Tecnológica Federal do Paraná (UTFPR)
publishDate 2022
url http://periodicos.utfpr.edu.br/rbqv/article/view/13337
_version_ 1805535463715373056
score 10,814766

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