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Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais

OBJECTIVE: To evaluate the quality of life (QoL) in patients with cystic fibrosis (CF) accompanied by a referral center in Minas Gerais using a application specific and validated.METHODS: Cross-sectional study of quantitative analysis with the application of the QoL questionnaire in CF, Shwachman-Ku...

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Principais autores: Santana, Rízia Silva, Aleixo, Andrezza Aparecida, Costa, Rainna Fontes Gonçalves, Borges Júnior, Laerte Honorato, Pereira, Janser Moura, Oliveira, Janaina Carla Silva, Azevedo, Vivian Mara Gonçalves Oliveira
Formato: Artigo
Idioma: Português
Publicado em: Universidade Tecnológica Federal do Paraná (UTFPR) 2018
Acesso em linha: http://periodicos.utfpr.edu.br/rbqv/article/view/8043
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spelling peri-article-80432018-12-01T02:32:04Z Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais Avaliação da qualidade de vida dos pacientes com fibrose cística atendidos em um hospital de referência de Minas Gerais Santana, Rízia Silva Aleixo, Andrezza Aparecida Costa, Rainna Fontes Gonçalves Borges Júnior, Laerte Honorato Pereira, Janser Moura Oliveira, Janaina Carla Silva Azevedo, Vivian Mara Gonçalves Oliveira Fisioterapia e Terapia Ocupacional Fibrose cística; Qualidade de vida; Questionários. Cystic fibrosis; Quality of life; Questionnaires. OBJECTIVE: To evaluate the quality of life (QoL) in patients with cystic fibrosis (CF) accompanied by a referral center in Minas Gerais using a application specific and validated.METHODS: Cross-sectional study of quantitative analysis with the application of the QoL questionnaire in CF, Shwachman-Kulczycki and spirometric values. The study sample consisted of 26 patients aged 6 to 29 years and 13 parents of children aged 6 to 13 years. Participants were divided into three groups: group I (6 to 13 years), group II (parents or caregivers of children 6 to 13 years), group III (≥14 years). The scores were presented as means and medians and analyzed using the Pearson linear correlation teste. The significance level of 5% was adopted.RESULTS: Patients with CF followed at this referral hospital in Minas Gerais presented a good perception of QoL and a excelent Shwachman-Kulczycki score. In group I, lower values for the digestive domain (67.49%) and higher for the domain implementation of treatment (83,84%) was found. In group II, lower scores in the weight area (65.70%) and higher for body image (84.61%) was observed. In group III, lower values for the social sector were found (71.12%) and higher for food (92.47%). Regarding the spirometric values, significant values were found correlating the relationship between forced expiratory volume in the first second and forced vital capacity (FEV1 / FVC) to physical domains / perception of health and functionality in group III.CONCLUSIONS: Patients with CF followed at the reference center of this study had a good perception of QoL, wich can be verified, in most domains analyzed, scores above 50. The use of specific questionnaires for the evaluation of QoL is a low cost method and should be easily applied and should be included in the routine of the health services1’ that serve1’ the population diagnosed with CF. OBJETIVO: Avaliar a qualidade de vida (QV) dos pacientes com fibrose cística (FC) acompanhados por um centro de referência de Minas Gerais mediante a aplicação de questionário específico e validado.MÉTODOS: Estudo transversal, de análise quantitativa, com aplicação do questionário de QV em FC, escore de Shwachman-Kulczycki e valores espirométricos. A amostra do estudo foi composta por 26 pacientes com idade de 6 a 29 anos e 13 pais de crianças com idade de 6 a 13 anos. Os participantes foram divididos em três grupos: grupo I (6 a 13 anos), grupo II (pais ou cuidadores de crianças de 6 a 13 anos), grupo III (≥14 anos). Os escores foram apresentados por médias e medianas e analisados por meio do teste de correlação linear de Pearson. Foi adotado o nível de significância de 5%.RESULTADOS: Os pacientes com FC acompanhados neste hospital de referência de Minas Gerais apresentavam boa percepção de QV e escore de Shwachman-Kulczycki excelente. No grupo I, foram encontrados valores menores para o domínio digestório (67,49%) e maiores para o domínio execução de tratamento (83,84%). No grupo II observou-se menores pontuações no domínio peso (65,70%) e maiores na imagem corporal (84,61%). No grupo III, valores menores para o domínio social (71,12%) e maiores para alimentação (92,47%). Com relação aos valores espirométricos, encontrou-se valores significativos correlacionando a relação entre o volume expiratório forçado no primeiro segundo e a capacidade vital forçada (VEF1/CVF) aos domínios físico/percepção da saúde e funcionalidade no grupo III.CONCLUSÕES: Os pacientes com FC acompanhados no centro de referência deste estudo apresentaram boa percepção de QV, o que pode ser verificado, na maioria dos domínios analisados, por escores superiores a 50. O uso de questionários específicos para avaliação de QV é um método de baixo custo e de fácil aplicação, devendo ser verdadeiramente incluído à rotina dos serviços de saúde que atendem a população diagnosticada com FC. Universidade Tecnológica Federal do Paraná (UTFPR) 2018-09-30 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf http://periodicos.utfpr.edu.br/rbqv/article/view/8043 10.3895/rbqv.v10n3.8043 Revista Brasileira de Qualidade de Vida; v. 10, n. 3 (2018) 2175-0858 10.3895/rbqv.v10n3 por http://periodicos.utfpr.edu.br/rbqv/article/view/8043/5790 http://periodicos.utfpr.edu.br/rbqv/article/downloadSuppFile/8043/984 http://periodicos.utfpr.edu.br/rbqv/article/downloadSuppFile/8043/993 Direitos autorais 2018 CC-BY http://creativecommons.org/licenses/by/4.0
institution Universidade Tecnológica Federal do Paraná
collection PERI
language Português
format Artigo
author Santana, Rízia Silva
Aleixo, Andrezza Aparecida
Costa, Rainna Fontes Gonçalves
Borges Júnior, Laerte Honorato
Pereira, Janser Moura
Oliveira, Janaina Carla Silva
Azevedo, Vivian Mara Gonçalves Oliveira
spellingShingle Santana, Rízia Silva
Aleixo, Andrezza Aparecida
Costa, Rainna Fontes Gonçalves
Borges Júnior, Laerte Honorato
Pereira, Janser Moura
Oliveira, Janaina Carla Silva
Azevedo, Vivian Mara Gonçalves Oliveira
Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
author_sort Santana, Rízia Silva
title Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
title_short Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
title_full Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
title_fullStr Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
title_full_unstemmed Evaluation of Quality of Life of in patients with Cystic Fibrosis treated in a reference Hospital of Minas Gerais
title_sort evaluation of quality of life of in patients with cystic fibrosis treated in a reference hospital of minas gerais
description OBJECTIVE: To evaluate the quality of life (QoL) in patients with cystic fibrosis (CF) accompanied by a referral center in Minas Gerais using a application specific and validated.METHODS: Cross-sectional study of quantitative analysis with the application of the QoL questionnaire in CF, Shwachman-Kulczycki and spirometric values. The study sample consisted of 26 patients aged 6 to 29 years and 13 parents of children aged 6 to 13 years. Participants were divided into three groups: group I (6 to 13 years), group II (parents or caregivers of children 6 to 13 years), group III (≥14 years). The scores were presented as means and medians and analyzed using the Pearson linear correlation teste. The significance level of 5% was adopted.RESULTS: Patients with CF followed at this referral hospital in Minas Gerais presented a good perception of QoL and a excelent Shwachman-Kulczycki score. In group I, lower values for the digestive domain (67.49%) and higher for the domain implementation of treatment (83,84%) was found. In group II, lower scores in the weight area (65.70%) and higher for body image (84.61%) was observed. In group III, lower values for the social sector were found (71.12%) and higher for food (92.47%). Regarding the spirometric values, significant values were found correlating the relationship between forced expiratory volume in the first second and forced vital capacity (FEV1 / FVC) to physical domains / perception of health and functionality in group III.CONCLUSIONS: Patients with CF followed at the reference center of this study had a good perception of QoL, wich can be verified, in most domains analyzed, scores above 50. The use of specific questionnaires for the evaluation of QoL is a low cost method and should be easily applied and should be included in the routine of the health services1’ that serve1’ the population diagnosed with CF.
publisher Universidade Tecnológica Federal do Paraná (UTFPR)
publishDate 2018
url http://periodicos.utfpr.edu.br/rbqv/article/view/8043
_version_ 1805292565609578496
score 10,814766

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