Quality of life of children and adolescents with cystic fibrosis: an integrative review
OBJECTIVE: To identify approaches to the quality of life of children and adolescents with cystic fibrosis.METHODS: This is an Integrative Review. The search took place in the months of May and September 2020, in the following databases: MEDLINE via PUBMED, Web of Science, CINHAL, in addition to LILA...
| Principais autores: | Xavier, Welker da Silva, Pereira, Cláudia Dayube, Reis, Adriana Teixeira, dos Santos, Rosilene Aparecida, Santana, Nelbe Nesi |
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| Formato: | Artigo |
| Idioma: | Português |
| Publicado em: |
Universidade Tecnológica Federal do Paraná (UTFPR)
2022
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| Acesso em linha: |
http://periodicos.utfpr.edu.br/rbqv/article/view/13821 |
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| Resumo: |
OBJECTIVE: To identify approaches to the quality of life of children and adolescents with cystic fibrosis.METHODS: This is an Integrative Review. The search took place in the months of May and September 2020, in the following databases: MEDLINE via PUBMED, Web of Science, CINHAL, in addition to LILACS, IBECS and BDENF via VHL. Descriptors were used, identified in the DECs (Health Science Descriptors) and MESH (Medical Subject Headings) in different combinations. Original articles, published in English, Portuguese or Spanish, produced between 2016 and 2020 were used.RESULTS: The main symptoms related to poor quality of life are sinonasal problems, sleep disturbances, mood changes, pain, pulmonary exacerbations and gastrointestinal problems. Consequently, there is a significant loss in social interaction, treatment, nutrition, physical and emotional functioning and school development of these individuals. As coping strategies, some non-pharmacological interventions can be used, such as yoga and massage therapy. In addition, caregivers also suffer from problems such as increased worries, levels of anxiety and depression.CONCLUSIONS: Given the above, the evidence presented can sensitize professionals about the importance of the subject and provide support for the planning of strategic actions, in the context of pediatric nursing, to improve the quality of life of children and adolescents with CF. Finally, it is understood that the results should be evaluated with caution, as the selected studies used different methodologies, assessment instruments and number of participants, which makes it difficult to generalize the data. |
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