Imagem da capa

Quality of life of children and adolescents with cystic fibrosis: an integrative review

OBJECTIVE: To identify approaches to the quality of life of children and adolescents with cystic fibrosis.METHODS: This is an Integrative Review. The search took place in the months of May and September 2020, in the following databases: MEDLINE via PUBMED, Web of Science, CINHAL, in addition to LILA...

ver descrição completa

Principais autores: Xavier, Welker da Silva, Pereira, Cláudia Dayube, Reis, Adriana Teixeira, dos Santos, Rosilene Aparecida, Santana, Nelbe Nesi
Formato: Artigo
Idioma: Português
Publicado em: Universidade Tecnológica Federal do Paraná (UTFPR) 2022
Acesso em linha: http://periodicos.utfpr.edu.br/rbqv/article/view/13821
Tags: Adicionar Tag
Sem tags, seja o primeiro a adicionar uma tag!
id peri-article-13821
recordtype ojs
spelling peri-article-138212024-05-01T10:37:39Z Quality of life of children and adolescents with cystic fibrosis: an integrative review Qualidade de vida de crianças e adolescentes com fibrose cística: uma revisão integrativa Xavier, Welker da Silva Pereira, Cláudia Dayube Reis, Adriana Teixeira dos Santos, Rosilene Aparecida Santana, Nelbe Nesi 4.00.00.00-1 Ciências da Saúde; 4.01.00.00-6 Medicina Fibrose cística; criança; adolescente; qualidade de vida. Cystic fibrosis; child; adolescent; quality of life. OBJECTIVE: To identify approaches to the quality of life of children and adolescents with cystic fibrosis.METHODS: This is an Integrative Review. The search took place in the months of May and September 2020, in the following databases: MEDLINE via PUBMED, Web of Science, CINHAL, in addition to LILACS, IBECS and BDENF via VHL. Descriptors were used, identified in the DECs (Health Science Descriptors) and MESH (Medical Subject Headings) in different combinations. Original articles, published in English, Portuguese or Spanish, produced between 2016 and 2020 were used.RESULTS: The main symptoms related to poor quality of life are sinonasal problems, sleep disturbances, mood changes, pain, pulmonary exacerbations and gastrointestinal problems. Consequently, there is a significant loss in social interaction, treatment, nutrition, physical and emotional functioning and school development of these individuals. As coping strategies, some non-pharmacological interventions can be used, such as yoga and massage therapy. In addition, caregivers also suffer from problems such as increased worries, levels of anxiety and depression.CONCLUSIONS: Given the above, the evidence presented can sensitize professionals about the importance of the subject and provide support for the planning of strategic actions, in the context of pediatric nursing, to improve the quality of life of children and adolescents with CF. Finally, it is understood that the results should be evaluated with caution, as the selected studies used different methodologies, assessment instruments and number of participants, which makes it difficult to generalize the data. OBJETIVO: Identificar abordagens acerca da qualidade de vida de crianças e adolescentes com fibrose cística.MÉTODOS: Trata-se de uma revisão integrativa. A busca ocorreu entre os meses de maio e setembro de 2020, nas bases de dados: MEDLINE via PUBMED, Web of Science, CINHAL, LILACS, IBECS e BDENF via BVS. Utilizou-se descritores identificados no DECs (Descritores em Ciência da Saúde) e MESH (Medical Subject Headings) em diferentes combinações. O corpus de pesquisa foi constituído por artigos originais, publicados nas línguas inglesa, portuguesa ou espanhola, publicados de 2016 a 2020.RESULTADOS: Os principais sintomas que se relacionam com uma baixa qualidade de vida são os problemas sinonasais, distúrbios do sono, alterações de humor, dores, exacerbações pulmonares e problemas gastrointestinais. Consequentemente, há um prejuízo importante no convívio social, tratamento, alimentação, funcionamento físico e emocional e desenvolvimento escolar desses indivíduos. Como estratégias de enfrentamento, algumas intervenções não farmacológicas podem ser utilizadas, como ioga e terapia com massagem. Além disso, os cuidadores também sofrem com problemas como, o aumento das preocupações, dos níveis de ansiedade e de depressão.CONCLUSÕES: Diante do exposto, as evidências apresentadas podem sensibilizar os profissionais sobre a importância da temática e fornece subsídios para o planejamento de ações estratégicas, no âmbito da enfermagem pediátrica, para a melhoria da qualidade de vida de crianças e adolescentes com FC. Por fim, entende-se que os resultados devem ser avaliados com prudência, visto que os estudos selecionados utilizaram diferentes metodologias, instrumentos de avaliação e número de participantes, o que dificulta a generalização dos dados. Universidade Tecnológica Federal do Paraná (UTFPR) 2022-12-08 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf http://periodicos.utfpr.edu.br/rbqv/article/view/13821 10.3895/rbqv.v14n0.13821 Revista Brasileira de Qualidade de Vida; v. 14 (2022) 2175-0858 10.3895/rbqv.v14n0 por http://periodicos.utfpr.edu.br/rbqv/article/view/13821/pdf Direitos autorais 2022 CC-BY http://creativecommons.org/licenses/by/4.0
institution Universidade Tecnológica Federal do Paraná
collection PERI
language Português
format Artigo
author Xavier, Welker da Silva
Pereira, Cláudia Dayube
Reis, Adriana Teixeira
dos Santos, Rosilene Aparecida
Santana, Nelbe Nesi
spellingShingle Xavier, Welker da Silva
Pereira, Cláudia Dayube
Reis, Adriana Teixeira
dos Santos, Rosilene Aparecida
Santana, Nelbe Nesi
Quality of life of children and adolescents with cystic fibrosis: an integrative review
author_sort Xavier, Welker da Silva
title Quality of life of children and adolescents with cystic fibrosis: an integrative review
title_short Quality of life of children and adolescents with cystic fibrosis: an integrative review
title_full Quality of life of children and adolescents with cystic fibrosis: an integrative review
title_fullStr Quality of life of children and adolescents with cystic fibrosis: an integrative review
title_full_unstemmed Quality of life of children and adolescents with cystic fibrosis: an integrative review
title_sort quality of life of children and adolescents with cystic fibrosis: an integrative review
description OBJECTIVE: To identify approaches to the quality of life of children and adolescents with cystic fibrosis.METHODS: This is an Integrative Review. The search took place in the months of May and September 2020, in the following databases: MEDLINE via PUBMED, Web of Science, CINHAL, in addition to LILACS, IBECS and BDENF via VHL. Descriptors were used, identified in the DECs (Health Science Descriptors) and MESH (Medical Subject Headings) in different combinations. Original articles, published in English, Portuguese or Spanish, produced between 2016 and 2020 were used.RESULTS: The main symptoms related to poor quality of life are sinonasal problems, sleep disturbances, mood changes, pain, pulmonary exacerbations and gastrointestinal problems. Consequently, there is a significant loss in social interaction, treatment, nutrition, physical and emotional functioning and school development of these individuals. As coping strategies, some non-pharmacological interventions can be used, such as yoga and massage therapy. In addition, caregivers also suffer from problems such as increased worries, levels of anxiety and depression.CONCLUSIONS: Given the above, the evidence presented can sensitize professionals about the importance of the subject and provide support for the planning of strategic actions, in the context of pediatric nursing, to improve the quality of life of children and adolescents with CF. Finally, it is understood that the results should be evaluated with caution, as the selected studies used different methodologies, assessment instruments and number of participants, which makes it difficult to generalize the data.
publisher Universidade Tecnológica Federal do Paraná (UTFPR)
publishDate 2022
url http://periodicos.utfpr.edu.br/rbqv/article/view/13821
_version_ 1805535467795382272
score 10,814766

Registros relacionados